| Issue |
Med Sci (Paris)
Volume 36, Décembre 2020
Les Cahiers de Myologie
|
|
|---|---|---|
| Page(s) | 34 - 37 | |
| Section | Prise en charge | |
| DOI | https://doi.org/10.1051/medsci/2020208 | |
| Published online | 11 January 2021 | |
Trachéotomie chez les enfants atteints de maladies neuromusculaires et scolarisation en milieu ordinaire
Sont-elles compatibles ?
Tracheotomy in children with neuromuscular diseases and regular schooling: are they compatible?
1
CHRU Tours, Neuropédiatrie et Handicaps, Tours, France.
2
Université François Rabelais de Tours, France.
3
Inserm U1253, Tours, France.
Les enfants atteints de maladies neuromusculaires nécessitent parfois une assistance ventilatoire au long cours. Parmi les techniques employées, la ventilation sur trachéotomie reste par définition invasive et à même de mettre en péril l’intégration scolaire du jeune malade.
Abstract
Ventilating a young patient via a tracheostomy remains an invasive method to tackle the respiratory compromise often observed in several neuromuscular disorders. This approach significantly impacts the schooling of these children. The authors have surveyed professionals dealing with education, care, or social support nationwide. Regional discrepancies in practices of schooling in such situations are noted. Tracheostomy seems a major factor of exclusion out of the ordinary schooling system.
© 2020 médecine/sciences – Inserm
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